Links & Resources
Resources and links to sources of further information and support for Idiopathic Intracranial Hypertension (IIH). These links are provided as a source of information on websites operated by other parties. We do not control such websites and we take no responsibility for their content. These links are provided for information and our inclusion of links to such websites does not imply any endorsement of views, statements or information contained in such websites.
- IIH UK – Website of the UK charity devoted exclusively to IIH and sponsor of the International IIH Support Forum.
- IIHWeekender.org.uk – the IIH Weekender is a joint project between IIH Support and IIH UK. The first IIH Weekender was held in May 20008, and IIH Weekender events are held annually.
- SHINE Spina Bifada, Hydrocephalus, Information, Networking, Equality. – Shine's main emphasis is on spina bifida and hydrocephalus, but they also have some information on IIH and shunt's.
- Brain & Spine Foundation – The Brain and Spine Foundation was set up in 1992 to develop research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine
- Baylie for Brains – Baylie has both Chiari Malformation and IIH.
- Melbourne Neurosurgery has a lot of information on neurosurgery, including shunt operation and lumbar punctures.
- Wikipedia has a very good explanation of IIH and it's symptoms and treatment
- Coventry Pain Clinic has a wealth of information on pain medication.
- Benefits and Work: a source of information on benefits and employment issues and lots more
- Benefits Now: self assessment tool for Disability Living Allowance and Attendance Allowance and disability equipment shop
- Intracranial Hypertension Research Foundation – The IHRF runs a patient registry, provides support for IIH patients, their families, and medical professionals, and produces a quarterly newsletter.
For much more information, links, and sources of information and help on matters relating to IIH and related symptoms and matters, see the "Info" section of the IIH Support forum (it's down near the bottom of the page on the main forum homepage).
