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Author Topic: venograms  (Read 3440 times)
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« on: September 29, 2013, 09:06:45 PM »

Sophie has been recommended a venogram as she marked narrowing on her jugular vein and they want to do a venogram t measure pressure and then possibly a stent.  They have said there is a 1 in 200 chance of a stroke.  She is only 9 and she has had some bad experiences. Before we go ahead with it I would like to hear from anyone about venogram and stenting and did they have any problems and what. X
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« Reply #1 on: September 30, 2013, 11:22:13 AM »

Hi I'm mum to a 10 year old with IIH.

When M had a venogram she had a cannula in her arm.  They scanned before adding the contrast - then she had to remain completely still whilst they injected the contrast through the cannula then they scanned again.  The container of contrast was HUGE.  M was suspected to have had a venous sinuous thrombosis previously as a consequence of other health issues and drugs but suffered no ill effects from the venogram.

We have no experience of stenting.

Hope you get lots of useful info from others,  G
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« Reply #2 on: October 08, 2013, 12:06:24 PM »

I've had many many venograms as I have very narrow veins on my left side. I have 9 stents and apart from some extra head pain when 3 were inserted at once I have had no problems. I also have IIH and whilst the stenting hasn't changed it, there is a significant decrease in the risk of stroke, so they tell me. I have a shunt now but stenting can be very successful for many from reading people's stories. DR Higgins at Addenbrookes is the best for stenting. I wish you luck and success  Smiley: gold star

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