RSS icon Subscribe to our "new posts" feed in a reader | RSS icon Subscribe to our "forum news" in a reader

IIH International Support Forum. Support. Advice. Information. Set up a direct debit JustGiving
 
IIH Support Forum
September 15, 2014, 05:02:14 AM *
Welcome, Guest. Please login or register.

Login with username, password and session length
 
   Home   Help Search Login Register  
Pages: [1]   Go Down
  Print  
Author Topic: venograms  (Read 1382 times)
0 Members and 1 Guest are viewing this topic.
lola2701
Neuron
*
Offline Offline

Posts: 2


« on: September 29, 2013, 09:06:45 PM »

Sophie has been recommended a venogram as she marked narrowing on her jugular vein and they want to do a venogram t measure pressure and then possibly a stent.  They have said there is a 1 in 200 chance of a stroke.  She is only 9 and she has had some bad experiences. Before we go ahead with it I would like to hear from anyone about venogram and stenting and did they have any problems and what. X
Logged
dabirg
Moderator Group
*
Offline Offline

Posts: 202


« Reply #1 on: September 30, 2013, 11:22:13 AM »

Hi I'm mum to a 10 year old with IIH.

When M had a venogram she had a cannula in her arm.  They scanned before adding the contrast - then she had to remain completely still whilst they injected the contrast through the cannula then they scanned again.  The container of contrast was HUGE.  M was suspected to have had a venous sinuous thrombosis previously as a consequence of other health issues and drugs but suffered no ill effects from the venogram.

We have no experience of stenting.

Hope you get lots of useful info from others,  G
Logged
andreamay
Moderator Group
*
Offline Offline

Posts: 116


« Reply #2 on: October 08, 2013, 12:06:24 PM »

I've had many many venograms as I have very narrow veins on my left side. I have 9 stents and apart from some extra head pain when 3 were inserted at once I have had no problems. I also have IIH and whilst the stenting hasn't changed it, there is a significant decrease in the risk of stroke, so they tell me. I have a shunt now but stenting can be very successful for many from reading people's stories. DR Higgins at Addenbrookes is the best for stenting. I wish you luck and success  Smiley: gold star
Logged

Posts by members, moderators and admins are not considered medical advice and no guarantee is made against accuracy. Please see your doctor before taking advice found on the internet.
Pages: [1]   Go Up
  Print  
 
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.19 | SMF © 2013, Simple Machines Valid XHTML 1.0! Valid CSS!
Page created in 0.046 seconds with 19 queries.

The IIH Support Forum is designed for educational purposes only and not for providing medical advice. IIH UK and IIH Support are privately owned web sites, run and administered by volunteers. We are not medical professionals. We wish to provide an informative and friendly environment to learn about IIH and offer support for others in similar situations. Views expressed in the forum are entirely those of the author and do not represent those of IIH UK or IIH Support. IIH Support is not responsible or liable for any damages, which may occur as a result of your use or misuse of the information available on this web site.

Direct URLs to content in this site shall not be embedded and linked from within outside web sites (i.e., "Hotlinked") without prior written permission of IIH Support.

Copyright © IIH Support, 2006 – 2014. All Rights Reserved. IIH Support is a Not For Profit site operated for the benefit of the IIH community by volunteers.

Privacy | Terms of Use | Forum Rules | Credits | Design by: NeonBlue Web Design | Database systems © FAT promotions 2013. All rights reserved.